Our Frontotemporal Dementia Journey
A long, hard road . . .
Standing on the wooden platform of the Chicago "L," I wondered if I were strong enough to face the AFTD Annual Conference. AFTD is the non-profit for Frontal Temporal Degenerative diseases. Over 350 people from 32 states and multiple countries were in attendance at the conference. One thread connected us all - FTD.
After three days in Delray Beach at my father’s house for spring break, our family finally made our way to the local public beach. It was a sunny but very windy day. My middle son, Matthew, noted the wooden sign with the lifeguard flag colors as we strolled down the boardwalk towards the sand. Red... Continue Reading →
A friend asked me recently, “What is your greatest fear in life?” Without hesitation, I choked out, “That my children will get this crappy disease.” My body curled into a fetal position, and I cried. My husband has a rare, terminal brain disease called Frontotemporal Dementia (FTD). It can occur spontaneously or in 40% of... Continue Reading →
Woke up in a great mood. Easter was over, and it had been a relaxing day. My three sons were returning to school from spring break. After some procrastination (mainly to ensure our huge house transactions were complete), I scheduled a followup appointment with our elder care attorney to finalize our wills and my Power... Continue Reading →
Our Frontotemporal Dementia Journey 