Our Frontotemporal Dementia Journey
A long, hard road . . .
Tonight I am a weepy mess. I can’t even rationalize why. There are so many emotions. I took my husband to a simple doctor’s appointment to draw blood this morning. I looked over, and he had tremors. It was a new symptom. One I had not noticed before. His head was shaking front to back.... Continue Reading →
Today is Easter Sunday. It doesn't look like a typical Easter. We are in the midst of a world health crisis like no other in our lifetime. Storms are raging outside my window. Storms. It's a great metaphor for my feelings today. Secretly, I am relieved that folks can't dress up in their Sunday best... Continue Reading →
Oh, dear. There are not words. Knew this was a progression that would eventually occur, but I was so not ready for it. My husband seems so high functioning in some ways. He still goes to work. He still goes to the gym. He still walks. The walking may have to come to an end.... Continue Reading →
It is easy to wallow in the negative emotions. There are many. It happens often. But, in peeling back the layers, there are many blessings as well. We've been on a journey of self-discovery. One that has reshaped our family's priorities. One that has bonded us through grief. Finding and embracing the blessings have pulled us through the firestorm of the first two years post-diagnosis.
Yesterday was another trip to Vanderbilt Hospital in Nashville. It's a two hour drive on a good day. It's two hours to reflect on the limited conversational abilities of my husband. It's two hours listening to comments about the passing billboards and buildings that have no real relevance to our lives. Yesterday, the trip was... Continue Reading →
Our Frontotemporal Dementia Journey 