Another Trip to Vandy

Yesterday was another trip to Vanderbilt Hospital in Nashville.  It's a two hour drive on a good day.  It's two hours to reflect on the limited conversational abilities of my husband.  It's two hours listening to comments about the passing billboards and buildings that have no real relevance to our lives.  Yesterday, the trip was... Continue Reading →

5 Sec or 5 Min Answer?

I'm asked all the time about how my husband is doing.  He has a degenerative frontal lobe disease called FTD (Frontotemporal Dementia).  As suggested by someone on a FTD forum for spouses, my response will now be, "Would you like the 5 second or 5 minute answer?"  Either response is absolutely fine.  I have no... Continue Reading →

AFTD Conference – The Gift of Connections

Standing on the wooden platform of the Chicago "L," I wondered if I were strong enough to face the AFTD Annual Conference. AFTD is the non-profit for Frontal Temporal Degenerative diseases. Over 350 people from 32 states and multiple countries were in attendance at the conference.  One thread connected us all - FTD. 

Beach Trip – Got Your Back Kid

After three days in Delray Beach at my father’s house for spring break, our family finally made our way to the local public beach. It was a sunny but very windy day. My middle son, Matthew, noted the wooden sign with the lifeguard flag colors as we strolled down the boardwalk towards the sand. Red... Continue Reading →

FTD Genetic Link – Live Your Life Every Day

A friend asked me recently, “What is your greatest fear in life?” Without hesitation, I choked out, “That my children will get this crappy disease.” My body curled into a fetal position, and I cried. My husband has a rare, terminal brain disease called Frontotemporal Dementia (FTD). It can occur spontaneously or in 40% of... Continue Reading →

Sucker Punched – Getting Our Wills

Woke up in a great mood.  Easter was over, and it had been a relaxing day.  My three sons were returning to school from spring break. After some procrastination (mainly to ensure our huge house transactions were complete), I scheduled a followup appointment with our elder care attorney to finalize our wills and my Power... Continue Reading →

Let Me Feel

Let me feel.  You must.  Please do not temper my need to feel.  Sometimes it requires tears.  Many times it requires venting.  When it hurts the most, it requires writing.  It's a way to process, express, release. Feeling is not just grief.   It's guilt.  It's the guilt of being able to thrive in the midst... Continue Reading →

Warrior

Warrior.  Several friends (completely independently of each other) following our story have referred to me as a warrior.  This is not how I view myself.  I’m just a wife, mom, and friend doing what is necessary to help and protect my husband and family.  Yet, after careful consideration, there may be some truth to his... Continue Reading →

Hand-Me-Down Swingset

Today, I shut the front door on our house of 14 1/2 years.  We had planned to move when the oldest two left for college.  Due to my husband's terminal illness, that timeline was pushed up by five years.  I was not ready.  There were too many planned projects incomplete.  The nurseries had not been... Continue Reading →

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