Warrior

Warrior.  Several friends (completely independently of each other) following our story have referred to me as a warrior.  This is not how I view myself.  I’m just a wife, mom, and friend doing what is necessary to help and protect my husband and family.  Yet, after careful consideration, there may be some truth to his... Continue Reading →

Hand-Me-Down Swingset

Today, I shut the front door on our house of 14 1/2 years.  We had planned to move when the oldest two left for college.  Due to my husband's terminal illness, that timeline was pushed up by five years.  I was not ready.  There were too many planned projects incomplete.  The nurseries had not been... Continue Reading →

Sixth Birthday

Today is our youngest son, Jackson's, sixth birthday.  For years, I've considered my adult life to be "before Jackson" and "after Jackson."  His birth was a considerable landmark in my life and literally rocked my world.   I became unexpectedly pregnant at 40.  My husband and I had two sons (10 and 9) already that seemed... Continue Reading →

What Year?

Overheard a conversation between our five year old and my husband this morning.  They were talking about West Point.  My husband's most proud accomplishment (besides his kids, of course) was his acceptance and graduation from West Point.  It has been a theme in our marriage.  Our wedding took place at the Cadet Chapel in the... Continue Reading →

This Ain’t Easy, Friends

Last Saturday night our family, my mother, and some friends went to dinner at a lively fish fry restaurant.  It is notoriously loud, which works well for my husband who no longer understands that he practically yells when he talks in a social setting. I called him down several times for his behavior.  He was... Continue Reading →

A Necessary Betrayal – POA

The ultimate, yet, necessary betrayal occurred today.  My husband and I met with an elder care attorney so he could sign Power of Attorney documents officially giving me (his wife) the right (and responsibility) to make financial and medical decisions for him.  The same designee's were made 8 years ago in our original power of... Continue Reading →

Get Off the Court

Last night I behaved poorly.  Yelled at the opposing coach four times during my son's basketball game to get off the court.  He was standing on the sidelines but kept stepping on the court during the game.  It bugged me.  It was defiant behavior jeopardizing the safety of the players.  It was referees not controlling... Continue Reading →

Curse You

Yesterday, my oldest son (15 yrs old) got into the car after soccer practice and starts with, "Guess what?  I got called out of class today to the counselor's office to talk about our family's situation.  Apparently, there is something now in the computer system about dad, and the counselors wanted to talk to me... Continue Reading →

I Don’t See It

"I do not see the disease." "He seems pretty normal."  These are frequent comments from some.  Perhaps these sentiments are supposed to make me, the spouse, the caretaker, the one who drove the train to a diagnosis, feel better.  Or, maybe, it is to make you feel better - like it isn't actually happening and... Continue Reading →

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