What Year?

Overheard a conversation between our five year old and my husband this morning.  They were talking about West Point.  My husband's most proud accomplishment (besides his kids, of course) was his acceptance and graduation from West Point.  It has been a theme in our marriage.  Our wedding took place at the Cadet Chapel in the... Continue Reading →

This Ain’t Easy, Friends

Last Saturday night our family, my mother, and some friends went to dinner at a lively fish fry restaurant.  It is notoriously loud, which works well for my husband who no longer understands that he practically yells when he talks in a social setting. I called him down several times for his behavior.  He was... Continue Reading →

A Necessary Betrayal – POA

The ultimate, yet, necessary betrayal occurred today.  My husband and I met with an elder care attorney so he could sign Power of Attorney documents officially giving me (his wife) the right (and responsibility) to make financial and medical decisions for him.  The same designee's were made 8 years ago in our original power of... Continue Reading →

Get Off the Court

Last night I behaved poorly.  Yelled at the opposing coach four times during my son's basketball game to get off the court.  He was standing on the sidelines but kept stepping on the court during the game.  It bugged me.  It was defiant behavior jeopardizing the safety of the players.  It was referees not controlling... Continue Reading →

Curse You

Yesterday, my oldest son (15 yrs old) got into the car after soccer practice and starts with, "Guess what?  I got called out of class today to the counselor's office to talk about our family's situation.  Apparently, there is something now in the computer system about dad, and the counselors wanted to talk to me... Continue Reading →

I Don’t See It

"I do not see the disease." "He seems pretty normal."  These are frequent comments from some.  Perhaps these sentiments are supposed to make me, the spouse, the caretaker, the one who drove the train to a diagnosis, feel better.  Or, maybe, it is to make you feel better - like it isn't actually happening and... Continue Reading →

Holding the Bucket – Married but Single

My real estate agent shared an inside expression with me recently.  She said there are times during a property transaction where an agent must carry his/her own bucket of responsibilities and the other agent's, too.  This was a perfect analogy for how I now feel.  It is me holding the family bucket.  No one else. ... Continue Reading →

Goodbye Volunteer

Today I grieve.  Getting out of bed was tough.  Getting off the couch even tougher.  It is the day I finally turned over the last of my volunteer responsibilities to someone else.  I didn't let it go easily - held on to it for entirely too long.  Saying goodbye to this part of my life... Continue Reading →

FTD FAQs – Our Story

If you are like me, you are the seeker of a deeper understanding especially of things new to you.  These are the most common questions asked when my husband's diagnosis is shared.  It is December 2017.  Here is where we are in the disease. What is this disease called? FTD - Frontotemporal Dementia.  It is... Continue Reading →

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