Today I grieve.  Getting out of bed was tough.  Getting off the couch even tougher.  It is the day I finally turned over the last of my volunteer responsibilities to someone else.  I didn't let it go easily - held on to it for entirely too long.  Saying goodbye to this part of my life... Continue Reading →

If you are like me, you are the seeker of a deeper understanding especially of things new to you.  These are the most common questions asked when my husband's diagnosis is shared.  It is December 2017.  Here is where we are in the disease. What is this disease called? FTD - Frontotemporal Dementia.  It is... Continue Reading →

Five years.  It has taken five incredible years to finally have an answer to my husband’s symptoms.  The road has been long and rocky — so much to navigate medically and emotionally.  My hope by sharing our journey is to help increase the understanding of this little known rare disease and to also, perhaps, offer a […]